The experiences of women with heart disease: what are their needs?

PURPOSE To identify experiences and needs of women with coronary artery disease. METHODS Qualitative research utilizing focus groups and grounded theory. Women were recruited from the University of Ottawa Heart Institute Alumni, a group of former Heart Institute patients, and from the Heart Institute cardiac rehabilitation program. FINDINGS All women had difficulties recognizing their symptoms as heart disease and 35% reported they were initially misdiagnosed. In the post-diagnosis period, the experiences of older and younger women differed. For women over 60, maintaining their functional capacity, memory problems and a focus on resiliency were the main issues. For women under 60, emotionally focussed concerns were predominant. Both groups had to contend with over-protective family members. CONCLUSIONS These findings could contribute to the development of more effective public education campaigns. They also highlight the need for programs and research in the area of women's heart health and rehabilitation that address emotional aspects of the illness.